UPDATE! I went in to see my Urologist a couple of weeks back following the ER visit & unreturned phone calls, etc. He walked in the exam room without my chart & asked what was going on. I reminded him of the many phone calls I made following my visit to the ER and told him I had the hospital fax him all my records. He acted surprised and left the room. After returning he said, "Oh yeah. I remember now. It didn't show anything urological so I'm not sure what I can do to help you. It did, however, show you had a "spot" on your left ovary and right lung but since the pain is on your right side, I'm baffled. I think I will send you to a GI dr." I left that exam room discouraged but steadily getting angry. I went straight to medical records and got all of my records.
As I sat in the parking lot reading my medical records, I became outraged. On one day he reported my tumor to be graded 1.5, another date he reported it to be a 3-4 and yet another a 2. Everything in the reports were inconsistent. He also said he had "talked to the patient in length about her diagnoses of BC and have explained treatment options, pros and cons and she understands." What a bunch of bull!
Next stop...the GI dr. Very nice, concerned and thorough. He ordered a colonoscopy and a ct with contrast. I meet with him tomorrow for his official results. The day of the colonoscopy he said "everything looked good" and I got a disc of the CT and had a local dr friend look at it. It shows a 13mm spot in one kidney, spot on ovary and the base of my right lung and adjoining lymph node. At that point, I decided to contact Cancer Treatment Centers of America.
I live in NE Texas. Although their Tulsa location is closest, it is considered out of network with my insurance so I'm flying to Atlanta Jan. 15-20. I don't know if they are the right decision but I wanted to go somewhere where they could check me from head to toe and give me answers as to what I'm dealing with. My prayer is that the things they've seen on the CT scans are just cysts, scar tissue, etc. But I have to know for my own piece of mind. Hubby won't be able to accompany me. He works for the good ole US govt (rolling my eyes) and has to fly out of the country on business for a cpl of weeks. Right now I think my best friend, who is an ovarian cancer survivor, will go with me if she's approved for time off of work.
So...that's where things stand as of now. If any of you have had any experience with CTCA, please let me know. I don't know what to do or where to go. Hubby thinks I'm jumping the gun but I know I have to do something.
Hope you all had a Merry Christmas. I look forward to y'all's feedback!!
Natasha