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Can you tell me about Bladder replacement options

7 years 8 months ago #37412 by sara.anne
WOW!! This has been a hot topic...now up to 11 pages!!! Think it would be a good idea to start posting in a new thread so that users don't get confused as to which case they are reviewing. :)

Will lock this now.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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7 years 8 months ago #37379 by alanjay
Dear emr7888,
I am 2 weeks post op so I cannot comment on products. My prayers go out to you and your son,. It is very important that your family treat your son no differently but be very encouraging and compassionate. I have gotten this from my family and have been able to overcome any negative feelings about my ostomy. My wife actually helps me change my bag. Well good luck to you and your son
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7 years 8 months ago #37378 by alanjay
Mike,
Funny you mentioned coloplast. I now have a personal healthcare nurse assigned by insurance company. (probable assignde to me becauea I have billed over $400,000 since 1/01/10 when I started with them, but they deny it). THe healthcare nurse suggested I check with coloplast for future supplies as well.
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7 years 8 months ago #37377 by alanjay
THank you Duke,
Attitude is everything. I had a choice, Life or a painful Death. I chose life. I had surgery 16 days ago and only issue is leaky penis which my doctor told me will go away in couple of months. I can depend on Depends (PUN INTENDED)
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7 years 8 months ago #37376 by alanjay
My doctor was amazed, my staples are out and I am fully sealed with no aftercare to the stapled area needed. The stints came out and my new stoma is now 7/8" so I no longer have to cut my bag (Just my luck, I just spent $5 on a new pair of curved scissors).
My heart goes out to the 13 yr old boy that will be going through this. I just hope he has supportive parents and siblings.
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7 years 8 months ago #37375 by alanjay
You were right on the mark about how long the leaking will last according to my doctor. I was shown a 3rd way to put on my bag, this one looks the best for me and is easy
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