Forum

× Welcome click the New Topic button to post

WHO WOULD YOU SEND YOUR MOTHER OR FATHER TO?.......

8 years 6 months ago #32019 by Patricia
Joe9..first of all...post in the "non invasive section"
If it were me and i lived in Georgia...the closest bladder cancer specialty center is at Vanderbilt in Nashville...Dr.Sam Chang very good
http://www.vicc.org/dd/display.php?person=sam.chang
Pat
If you're having trouble posting hit the help button and Cynthia will get you to the right spot...

Please Log in or Create an account to join the conversation.

8 years 6 months ago #32010 by joe9744
I am new to the blog and not sure what I am doing at this point. I am going thru BCG treatment sessions at present. If this does not work I will need to have a RC. Where and who should I consider to perform the surgery. I am female and live in the Atlanta, Georgia area, however I am willing to go anywhere.

Please Log in or Create an account to join the conversation.

8 years 7 months ago #31808 by vgau
You hear about people that make a difference and are amazed.

At this site, you are for sure someone that amazes everyone, but also someone that makes a difference.

The research that you do for everyone, the advice that you give, and the information you share is something that just can't be re-paid.

Thanks for who you are and know that someone who was so important to you is probably looking down and saying, Yup, that's my gal.

Vi

Dx 10/5 Non Invasive Papillary

Please Log in or Create an account to join the conversation.

8 years 7 months ago #31787 by sara.anne
Pat, your story reminds me of a number of years ago when my internist left town. I asked my breast cancer surgeon for a suggestion of whom I might see. He told me that he knew exactly the right doctor for me. Then he said that he would write a letter recommending me to the internist. WHOA, I said. Why would you need to write a letter of recommendation for me? Well, Sara Anne, he said. Not everyone wants a patient like you. You ask questions!!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

Please Log in or Create an account to join the conversation.

8 years 7 months ago #31785 by Patricia
Thanks Mike..but funny all i can remember are the ones i don't make an impression on. I hope that i help. I had a wonderful mentor in Wendy back when it was Web/cafe forum and i'd like to think i have followed in her example of research and guiding people to that research so that they can make a informed decision.
By the way i found my present internist after my great one died by asking my top opthamologist who he went to...kinda sneaky but hey it works. I really do think the most dedicated docs are still in the University setting but you still have to be your own advocate or have someone willing to do that for you. It doesn't make you very popular however!! I have seen so many mistakes done particularly with drugs and thats another story!!!
pat

Please Log in or Create an account to join the conversation.

8 years 7 months ago #31776 by mmc
Pat,

I agree. I never liked that line because I also thought it didn't really do anything. If anything, the question should be "Who would you go to if you had xxxx?". They can't go to themselves so it would have to be somebody else. Even then, the research is the way to go to find the best answer.

Every doctor is going to think they are good so I'd expect the answer would almost always be "I would send my mom right here since we are one of the best".

Bunch of hooey!!!!

So sorry to read your story about your husband. I hope you realize that people all over the world appreciate all you do and that you have changed and saved lives by what you do on this forum and others.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add attachements.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 1 User and 284 Guests 
Regor's AvatarRegor

Legend: Site Administrator Global Moderator Moderator Banned User Guest

Statistics

Total Messages: 50861 Total Sections: 1 Today Open: 0 Today Total Answer: 2
Total Subjects: 6516 Total Categories: 11 Yesterday Open: 1 Yesterday Total Answer: 8
Total Users: 7775 Latest User: Sjklawi
Powered by Kunena Forum