Pat, I am so sorry you had to go through this and carry this the past four years. What kept you from going for his neck? I now understand why you always advise the big teaching hospitals and the best doctors.
I agree with you, Pat. Although I have never had to go through what you have, I have learned by trial and error never say, "Where would you send your Mother or Father etc".
I have asked doctors (esp. my internist - I respect) "please recommend the best doctor for this test, procedure etc., and please know it does not have to be local or one of your friends". Sometimes it just seems easier to go with the closest one, and other times with insurance, finances and fear of the unknown, that dictates where one receives care.
I don't have the medical vocabulary that you have, Pat, but I do try to do my own research and I also do backgrounds (schools,written papers anything I can find). I can only rest when I know I have done the best I can do, and asking the hard questions. (I don't always want to hear the answers
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Pat you have given me wonderful advice and I have never gone wrong following through
I wish I knew your husband, I am sure he was "a good one" look who he married