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Brand new here, with a stupid question.

8 years 9 months ago - 8 years 9 months ago #30360 by mmc
Pat,

There is a database indexing problem in the Forum.
When viewed under Profile, posts that belonged to Sunflower1 (Lynn) show up as being from StarraeAday1 when they shouldn't.

The posts are from before Star joined.

This same problem exists with Babsiebob and Rudyskier. Babsiebob's (Barbara) posts show up as being from Rudy.

Hope that clears up the confusion.

In the meantime, if anyone sees messages listed as being from someone in their profile view and those messages are from before that person actually joined the Forum, that indicates an index problem.

The problem has been reported so hopefully the database problem can get sorted out soon.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 9 months ago - 8 years 9 months ago #30359 by Patricia
Star...a little confused. Some of your posts have gotten confused with Sunflower1.......oops.
pat

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8 years 9 months ago #30332 by mmc
Good idea Rudy!

Didn't mean to hijack the thread, but that is what I did.
Mea culpa.

I just created a new thread on this topic.


Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 9 months ago #30330 by rudyskier
Nancy: I agree with Mike in that the voiding problem is related to males with BPH, I too had a number of UTI's years before every being diagnosed with a bladder tumor. The only way it was found was when I awoke one morning to unrinate and found a stream of blood. Up until that time I just figured I had the usual 50 year old male enlarged prostate troubles.

Granted it may not be the only cause but I feel as Mike does there could be some validity to the voiding issue.

I had no history of this in my family, my mother, father and brother smoked all their lives. On the other hand my father died of prostate cancer and my brother had his removed a few years ago due to prostate cancer. He is fine now still smokes but no BC. Go figure!

Rudy

;) Perhaps we should begin a new thread with respect to all this and give Starr some better oportunity to relate her present problem dealing BC.

;)

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8 years 9 months ago #30325 by Nix
Mike,
I didn't have any urinary retention before my diagnosis. I have only had one urinary infection in my entire life - and that was years ago.
However, now I do have urinary retention due to the BCG. It is a slowly getting better, but because of the damage from the BCG I wonder if it will ever get all better, and now wondering if the "retention" will increase my chances of a reoccurence?
After reading one of your responses yesterday - my brother was also treated for three bladder infections and all along it was BC.
When I first noticed blood, it was a Sat. and I went directly to the ER. (since I knew my brothers history). Lucky, the ER doctor ordered a sonogram and a tumor was found.

Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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8 years 9 months ago #30321 by mmc
George,

Did you have enlarged prostate issues prior to bladder cancer?

Actually, calling all guys who have or have had bladder cancer, did you have enlarged prostate prior to getting bladder cancer and did it affect frequency and completeness of voiding?

..and calling all women, did you have any urinary retention issues prior to having bladder cancer?

I sent a note to my surgeon (at a bladder cancer center teaching hospital) about doing a study.

My theory is that people who have urine retention issues (don't always void completely) are at higher risk.

The study I saw on the link of BPH is flawed (IMHO). They indicated that there was a higher incidence of bladder cancer in patients who had a TURP. Kind of like it's the TURP's fault. My theory is that the people who get a TURP are the ones who are fed up with the urinary frequency and urgency issues and therefore they have the type of BPH that constricts the urethra.

Therefore, men with BPH that constricts the urethra should be more vigilant about other symptoms and more closely watched by a urologist OR should be treated for that condition sooner in order to reduce the increased risk of bladder cancer. That could prevent some occurences and cause others to be caught sooner.

Again, my point is that it is the lack of complete voiding on a regular basis (regardless of the cause but in men the primary cause is BPH) is the true culprit. Lack of complete voiding means that any and all carcinogens, that the body tries to filter out, sit in the bladder exposing its surface to higher concentrations of carcinogens for longer periods of time.

I know I had about two years of UTIs that were not UTIs prior to finally being diagnosed. Had I been informed by my GP that having the type of BPH I had could increase bladder cancer risk and that if I got unexplained UTIs....

Do we have any urologists that act advisors to ABLCS? If so, maybe we can give them the same idea for a study. I think this could actually do some good for some people in the future. Of course, I could very well be wrong. Lord knows it has happended before :). But, that's the reason for scientific studies under controlled conditions. To prove this kind of thing to be right or wrong.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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