Would appreciate any opinions or experience with multiple recurrences.
I received a TURBT for a low grade Ta TCC in October of 2018.
November of 2019 I was told I had a 1/2 cm tumor. (The first one was 1 1/2 cm) The Urologist said it was in the same general area, right lateral wall, and the office, or done in the OR. I chose OR. The diagnosis was small papillary neoplasm of low malignant potential (PUNLMP).
A week ago at the second three month checkup following the December surgery, I was told another small tumor was found. Approx. ½ centimeter. Urologist suggested it was similar to the last one, and did not appear to be muscle invasive.
I had the third TURBT done this week on Tuesday.
Following surgery she said I had 1 cm tumor and cystitis cystica. And wrote this note for me: Cystitis Cystica cystic mucosal inflammatory changes around the bladder tumor.
Doctors notes after surgery:
“Patient had one small 1 cm tumor as well as some satellite what appeared to be almost like cystic changes alongside on the bladder dome”
Has anyone had, or know what cystitis cystica is?? Is it another form of cancer?
Is a second recurrence within six months a very bad sign? Do frequent recurrances have a tendency to become high grade or muscle invasive?
DX 10-19 First TURB Low grade, non invasive papillary urothelial carcinoma pTa. Recurrence 11-19 Second TURB DX Papillary Urothelial Neoplasm of Low Malignant Potential (PUNLMP)
Second recurrence discovered June 8, 2020 six months later.
