Recurrences Every Three Months

6 years 10 months ago #53508 by bypeep
Replied by bypeep on topic Recurrences Every Three Months
Thank you for the advice. I haven't been happy about the slice and dice solution, especially with the constant nature of it. I have found another hospital and team of fellowship-trained bladder cancer specialists and I'm trying to convince her to get a second opinion.

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6 years 10 months ago #53507 by sara.anne
Replied by sara.anne on topic Recurrences Every Three Months
I very much doubt that any competent urologist would simply remove tumors every three months. There are several options for additional treatments. The urologist is partly correct inthat BCG is not used with low grade UNLESS it continues to recur. Your mother needs to get a qualified second opinion ASAP.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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6 years 10 months ago #53506 by bypeep
Replied by bypeep on topic Recurrences Every Three Months
All the recurrences (3x since initial surgery in Dec of 2015) have been low-grade. We had asked about BCG treatments after the first operation but her urologist said that unless the grade changes he will just keep doing surgery every time it comes back. The trouble is that it's come back every visit since last October.

I have suggested going to another hospital and a urologist with a specialty in bladder cancer to see if they have other ideas.

Will this be the norm from here on out? New tumors every three months indefinitely?

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6 years 10 months ago #53505 by sara.anne
Replied by sara.anne on topic Recurrences Every Three Months
So sorry to hear of your mother's experience. Have the new tumors also been low grade?
One of the nasty little secrets of bladder cancer is its habit of coming back.

Has your mother's urologist discussed the possibility of BCG treatments? That is often recommended for recurring low grade bladder cancer. It also would be a good idea to get a second opinion from a place that has serious expertise in bladder cancer treatment. This isn't something to take lightly. Too many urologists are not up on the best current treatments and you really want that for her. If you let us know where you are located I am sure that some of our members will have good suggestions for you.

Wishing you all the best

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: bypeep

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6 years 10 months ago #53504 by bypeep
Recurrences Every Three Months was created by bypeep
My mother was diagnosed with low-grade non-invasive papillary bladder cancer in the fall of 2015. She had a TURBT to remove a large 2" tumor and had numerous satellite tumors cauterized during the procedure. She was clear for her next two scopes. Since then she's had a recurrence of a completely new tumor in a completely new location every three months since October of 2016.

What I guess I'm wondering is how these are growing so fast and so often when this is supposedly a slow-growing cancer? How does she go from no tumors and three months later has a new tumor (like clockwork) every three months - all growing from microscopic and undetectable to the size of a fingernail or larger in the span of just three months.

Are there other treatment options other than being sliced up every three months? Has anyone had this type of cancer knocked back by using some other method? Is she a candidate for the intravesical chemo? There has to something out there that will keep her from surgery every three months. Any ideas or suggestions?

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