4 weeks post TURBT & Mitomycin & MISERABLE!

6 years 3 months ago #48401 by Natashab5
I was originally diagnosed in 2013 with my first recurrence this January. I had a TURBT on 02/05 (2 tumors on bladder wall, 1 on bladder neck) with one dose of Mitomycin immediately following. That was 4 weeks ago & I feel worse now than I did then. Terrible lower back pain, recently started urinating blood & clots within the last couple of days & have no energy. Anyone else had similar reactions?

I should mention the day after surgery my face, feet & hands were bright red & hot. Almost like a sunburn. While the redness & heat in my face has gone away, it has remained on my palms & feet. Should I be concerned with these reactions?? I'm a 39 yr old mom. I desperately need to get to feeling better. My family needs me! Any input would be greatly appreciated!
Natasha

Diagnosed BC TaNoMo 11-8-13
TURBT11-11-13
01/15/14- negative cysto
07/14 - negative cysto
01/23/15 -new tumor found during routine cysto. Will be having TURBT followed with Mitomycin
02/05/15 TURBT, 3 tumors removed, MMC

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6 years 3 months ago #48403 by sara.anne
Replied by sara.anne on topic 4 weeks post TURBT & Mitomycin & MISERABLE!
Natasha, what does your doctor say about your issues? That is the first place to go for answers in a situation like this. Did you have mitomycin with your first TURB? It almost sounds a bit like an allergic reaction to it.

As for the bleeding, he did remove a few "chunks" of tissue and scabs from this could be causing the bleeding.

If you haven't checked back in with him, please do so immediately.

Best of luck to you for clearing this up

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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6 years 3 months ago #48462 by Natashab5
Replied by Natashab5 on topic 4 weeks post TURBT & Mitomycin & MISERABLE!
Thanks Sara Anne. I was indeed having an allergic reaction. They've put me on medication to counteract the side effects & am feeling a little better. Thanks again!

Natasha

Diagnosed BC TaNoMo 11-8-13
TURBT11-11-13
01/15/14- negative cysto
07/14 - negative cysto
01/23/15 -new tumor found during routine cysto. Will be having TURBT followed with Mitomycin
02/05/15 TURBT, 3 tumors removed, MMC

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