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Question about Turbt procedures

7 years 10 months ago #42705 by mmc
Well Les, that was a pretty important piece of information--that you are a woman. I'm all for equal everything but it is certainly different when it comes to things like catheters! :D

Glad you found something that helps and a better doc. We're always happy to help and this is the place to vent as well whenever needed.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 11 months ago #42702 by Les1953
Sorry for the confusion--I'm a 58 year old Woman. Anyway had turbt yesterday where they found two lesions, a cyst, and did 10 random biopsies. This after 6 BCG and interferon treatments. I'm bummed. Catheter is annoying and I have to leave it in until Thursday. Showering and getting dressed is a major ordeal. I did go up on our deck and have my decaf. I have a bag with long handles to put the foley bag into and carry it on my shoulder. More comfortable than leg bag. Btw I got the bag at target.

All-in-all, I like the new doctor much better. He gave us his cell number if we have any concerns this weekend. So far pain is tolerable with a little Vicodin. No work for 10 days and then a reduced schedule.

I'm glad I found this site. Other than my hubby, no one wants to hear about this stuff.

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7 years 11 months ago - 7 years 11 months ago #42679 by mmc
Karen,

T0 is CIS. Ta is then the lowest "stage". Grade is the measure of how aggressive the cancer is. Good that you are continuing with the BCG.

Here is a great link that explains stage and grade. There will be a test. :)

http://cancerhelp.cancerresearchuk.org/type/bladder-cancer/treatment/bladder-cancer-stage-and-grade

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 11 months ago - 7 years 11 months ago #42678 by upnorth
I found sleeping in my recliner worked out a lot better than in a bed.

Also use a good quality lube like KY. The cheap ones tend to dry out and leave scaling behind that hurt. Like little daggers of death is how someone described them.

Use a warm moist wash cloth around the cath and penis to clean it and soften the lube that is left before you reapply.

Hang in there, it only feel like for-ever!

Mark

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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7 years 11 months ago #42677 by Klg55
Mike,

I thought that the TNM: Ta was the lowest grade (maybe grade is not the right word). In the range of levels. The plan is to do another BCG set of treatments following the procedure to remove the cancer. Thanks again.

Karen

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7 years 11 months ago - 7 years 11 months ago #42676 by mmc
Les,

Glad to hear you switched to a major center for bladder cancer! Enough studies show that to be a major factor in better outcomes.

As for the catheter comfort. For men, the problem often tends to be growage and shrinkage of penis. Use KY liberally on the tube where it enters the body. I think it is like a minimum of four times a night while sleeping that the average male gets an erection. Not due to dreams or anything else, but just basic anatomy. Without lubrication, that can cause major discomfort.

The other thing is to make sure that the clamp that they attach to your leg to stabilize the hose is positioned properly. Again, when sleeping, if tossing and turning, tubes and that clamp can get out of position and can pull and that can be a problem. Try to adjust sleeping position to partial sitting up position like in a hospital bed and that can reduce issues as well.

Don't let the grand-kids or the dog try to run off with the bag while you are wearing it and never tick off your wife with a drainage bag in easy reach.

That's pretty much all I can think of. Maybe others will chime in with other suggestions.

Best of luck on the TURB. Keeping fingers crossed for "ALL CLEAR"!

:)

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

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