Well, I am new here..Female. Age 50.
Path report after first TURBT (1/31/2012) "Low grade Non- muscle invasive papillary carcinoma- 1 small tissue sample had high grade features".
My urologist explained this to be common and put off BCG treatments and recommended 12 wk follow up cystoscopy.
I saw a breast Dr in March, who recommended, and spoke to my uro about performing a PET scan due to many of my other issues (there are many). He saw no reason to do so, based on my bladder cancer diagnosis.
I returned for follow up cystoscopy in May, which revealed return of tumors. The second TURBT was performed on May 15. Pathology report same as the first. BCG treatments recommended. The after effects of surgery were much worse than with first TURBT. When I returned for 2 wk follow up visit, BCG treatments were again put off and my urologist left it to me to seek out other medical help with overlapping conditions, with a six wk follow up on July 12. I have done this, and things continue to be more complicated as I've completed more tests/procedures. There are more, yet to complete. Perhaps I will add more details when energy allows.."PET Scan" recommendation has come up with another specialist and I will know when I return to see urologist whether they spoke about it. Time reveals all.
For now, I am curious if others have had similar experiences before treatment protocol was actually implemented. And if any of you have other overlapping conditions which worsened after diagnosis/treatment? Any insight or advice is greatly appreciated..Blessings to all!
"Hope is the thing with feathers
That perches in the soul,
And sings the tune--without the words,
And never stops at all...."
Emily Dickinson
