And thanks for the encouragement that the journey makes some sense. It seems to be a combination of telling experiences to a newbie, and explaing my events to a been there/done that person. While your crystal ball seems to have visions, it will be interesting to hear your speculations compared to what you see as the next chapters unfold. #2 is in process.
yes, the individual situations are amazing, yet here there seems to be someone with advice/information for each one. Much better than random searching for random answers. And if you're in the "Club", the boots are intended to get you the best attention possible. Thanks, I appreciate your comment.
For me, the "start" had the least anxiety. They hadn't even looked yet, or found anything at that point. It's a wait and see thing. Not til afterwards do you go nuts, knowing something is wrong, and waiting to find out the diagnosis/prognosis. I consider myself a "very lucky" member of the club. And yes, in "lurking", one of the best things was finding people who "get it", and sharing from a multitude of cases. Thank you.
Excellent reading, I will find part 2 of your adventure. i am sorry you had to join this club but this forum is great as you have already noted. It is a font of information, support, caring and when needed a boot in the behind to get you to do something!
8 years 8 months ago - 8 years 8 months ago#39818by CatherineH
Hello RB... Your Episode 1 is very well written and entertaining to read, although I know when it was happening there was little humor to be found in the situation. What a gift hindsight is in that we can pull out the funny moments from all the pain and fear and choose to remember those to make our situation more tolerable.
This is definitely a club we would never have chosen to join, but are so happy to find a place where there are people "like us" to share our individual experiences with. And these people "get it." They understand what we went through and empathize with each subsequent checkup or treatment. It's a great place to hang out when you need to ask or share most anything.
Look forward reading to your next episode...
Best wishes... Catherine
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TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center