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Statistics on CIS?

10 years 2 months ago #31496 by mmc
Pat,

You look much younger in the picture than I had imagined. With all the research you've done and wisdom you have, I expected just a bit older. :)

Hope you are continuing to do well.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 2 months ago #31495 by mmc
I know that my first occurrence was CIS only. There was no other tumor. When it came back, a couple years later, the CIS was invisible at first. It showed up in cytology but my uro couldn't see it.

Finally, it did show up, and it appeared to be CIS, but it had also gone deeper and had become invasive into the muscle.

I don't remember the stats, but I recall it was pretty low to have "only" CIS and more frequent to be concomitant with some other primary tumor...

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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10 years 2 months ago #31494 by Patricia
I have not seen that stat. CIS is kind of a misnomer isn't it?
i had it but i also had a invasive papillary tumor growing out of it that was into the muscle....so probably my CIS didn't go into any statistic books!??
pat

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10 years 2 months ago #31492 by Nix
I have also read and been told that 2% have CIS. On the good news side is BCG is most effective on CIS. I am always looking for the silver lining :laugh:

Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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10 years 2 months ago #31490 by sara.anne
I just finished listening to the multimedia presentation Pat noted under "Articles of Interest" on diagnosis of bladder cancer in women. Came across a stastic I have seen before and wondered about. It states that only 1-2% of bladder cancers are CIS. Is this correct?

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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