Urethral stricture decsion Part 2

14 years 11 months ago #25800 by Patricia
Replied by Patricia on topic Urethral stricture decsion Part 2
Warren just picked this info up from uro today...new 2 wire tecnique for ureteroscopy...from Egypt.
www.urotoday.com/3392/urotoday_international_journal/new_in_press/ureteroscopy_with_two_guide_wires_a_new_technique.html

sounds interesting.
Pat
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14 years 11 months ago #25799 by britt
Replied by britt on topic Urethral stricture decsion Part 2
Unless the VA gets a new urologist(or should I say until!) I will be able to count on seeing this same dr as is needed.
Warren, when you mentionn a stricture is that what Im dealing with when the probe from the cysto is unable to reach the bladder? Im sure my block was in the prostae. The gut wrenching feeling went it was touched wal like my very soul being ripped from my body. It was just such an unbearable feeling.
While he did my TURB he was able to dialate me to 22mil. I dont know what the normal opening should be.
Thake cer my friend. Im at least back on track now. All I can do is pray to remean cancer free so as to limit the amount of dealings and changes I have to go thru to keep this in check
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14 years 11 months ago #25798 by wsilberstein
Replied by wsilberstein on topic Urethral stricture decsion Part 2
I really do feel badly for you and your situation, Britt. I can't understand why this country can't do better for our veterans. Fortunately for me, while I have to wait for the surgery, I can depend on being able to reach my regular urologist and the urethral reconstruction specialist without being shuffled from doctor to doctor. Should an emergency arise, I'm sure I'll find a way to deal with it. Plus, I haven't had a recurrence of bladder cancer in almost 8½ years since the original cancer. In spite of the grief I've had with the urethral stricture, I consider myself to be in good health. I really am a lucky man.
I also have another advantage, being a physician myself. If I start to have any symptoms I can do a urinalysis and culture without having to worry about reaching my urologist, so I can minimize delays.
I can deal with pain, not that I want to. My only anxiety about the delay is that my son is getting married in Chicago in October and I worry that if I'm having symptoms I won't be able to manage the trip or make the cookie platters and wedding cake.
Your situation just aggravates me. Having cancer is enough of a burden. Having complicating medical problems makes it even more essential that you receive ongoing care from a team of doctors who knows you. You are the kind of patient who should not be passed off from one facility or doctor to another. If the VA can't take care of you, they shold at least assign you a caseworker to make sure you are properly cared for.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician
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14 years 11 months ago #25790 by britt
Replied by britt on topic Urethral stricture decsion Part 2
Warren, Im sorry you have to have that hanging over your head all summer. That keeps happeneing to me with the VA. I require pre clearance for nearly everything and some of the tests take a while to get scheduled causing others to become out of date. I see the Uro on tues for my 1st consult with hime. My understanding is he does cystos only in surgery. Ill need at least a stress test for cardio clearance and maybe a MUGA. Last time i barely dodged an angiogram! That caused my 14 month delay before I had the cysto done. Now I have a stress test on order but its not til mid june causing my 3 mo post TURB window to start pushing 7 mo before its addressed.
Take care my friend
britt
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14 years 11 months ago #25789 by wsilberstein
Replied by wsilberstein on topic Urethral stricture decsion Part 2
Thanks Nancy

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician
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14 years 11 months ago #25786 by Nix
Replied by Nix on topic Urethral stricture decsion Part 2
Warren,
I have been following your threads,you have been thru so much, and it has been so encouraging reading how you are handling everything. I am grateful that you are doing better - now - and wish you a very uneventful five months:silly:


Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07
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