I'm curious what other doctors are doing for follow up for bladder cancer after a neo-bladder surgery several years out.
I'm nine years post surgery--Studer neo bladder, papillary, carcinoma insitu, and T1 High Grade
(High Papillary Urothelial Malignancy, T1 Grade 3). I'm seen at a urology clinic in a large hospital, on my 4th doctor. My first doctor told me this surgery resulted in a 5-10 % chance of bladder cancer coming back within five years, increasing one percent every year. I'm on my 4th doctor because each one moves on to somewhere else. This last one isn't concerned about recurrence. In fact, he said he doesn't need to see me unless I think I need it. My thought is "YOU"RE the doctor--you should be telling me." Up until this last guy, they were doing a CT scan annually.
Thanks for any advice.
