need to decide my next step

5 years 3 months ago #56578 by Alan
Replied by Alan on topic need to decide my next step
Teddybear,

Welcome. While I have not had to have a cystectomy, I did bookmark a very good site in case that day ever arises. my.clevelandclinic.org/health/treatments/12546-urinary-reconstruction--diversion

Keep posting with other questions, someone should see them with actual experiences.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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5 years 3 months ago #56577 by Teddybear
need to decide my next step was created by Teddybear
Hi,
I have completed chemotherapy and am now cancer free. My surgeon has told me I'm a candidate for a neobladder. I'm having a PET scan this week and will meet with the surgeon to decide the next step. From what I've read, there are three types of surgery: ostomy, Indiana pouch, and neobladder. There's also the possibility of monitoring with no surgery.
I'd like to know how others have done with these procedures. If you can give me your insight, I'd appreciate it. I'll also search for more posts here to see what I can find.
Thanks

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