× Click on New Topic to start your post

Urostomy Leak

1 week 13 hours ago - 1 week 13 hours ago #56381 by sara.anne
Again, like Alan, I have not had a cystectomy. You might use the Search function at the top right of this page and search for "urostomy" or "urostomy supplies."

Several members in the past have commented that they contacted every supply company that they found (Google it) and asked for advice. These companies were generous with advice and often provided free samples of various products for the patients to try.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

Please Log in or Create an account to join the conversation.

1 week 14 hours ago - 1 week 13 hours ago #56377 by Alan
DJ4,

I just wanted to acknowledge that your post is being seen. I have not had to have a cystectomy and many that view this probably haven't. At the same time I trust someone that has experienced your problem will see and be able to help.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

1 week 2 days ago #56362 by DJ4
I am new to this site and have had my urostomy for 2 years now. I was glad to loose 10lbs only to start a terrible journey. No matter what I do, I leak right away and am changing my appliance several times a day, even using paste!!! I do have a large belly!! Any suggestions??

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add attachements.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 410 Guests 

Statistics

Total Messages: 50861 Total Sections: 1 Today Open: 0 Today Total Answer: 2
Total Subjects: 6516 Total Categories: 11 Yesterday Open: 1 Yesterday Total Answer: 8
Total Users: 7775 Latest User: Sjklawi
Powered by Kunena Forum