After two years of resections (4 total) and two series of BCG treatments, firing my initial urologist and now having one that I am pleased with, I am at the juncture of a radical cystectomy. I am scheduled to have this operation at the VA Hospital in Tampa, FL. I am feeling quite desperate as I have no one to talk to inasmuch as the choice I must make regarding a neobladder or a Florida Pouch (that's what they call it here, I guess they give it a tan while they're in there.)
If anyone has information regarding support groups in my area, please respond. I have contacted the Nat'l Cancer Society and they have forwarded my email to a local hospital. I have made calls to the local hospital and no results as yet. It would help to have someone to speak with.
I appreciate having this forum available, thank you.