Cynthia,
first, thank you for being on these forums and sharing. I hope you continue to be healthy and that all is good.
For quite some time now, I thought I was crazy. Nagging health conditions (unexplained anemia, pain, continued weakness, fatigue, constant need to urinate, having to push to urinate, etc...) that have persisted for several years. Over that time, I found myself needing to rest (nap) (at times quite lengthy naps) and found sitting in the jacuzzi for an hour or two helped me get thru. All the time I did this, my spouse (innocently) would nag at me and needle me to get up and get stuff done or as we joke about it now...."get your lazy a** off the couch and get to work"!
Of course, she feels horrible about it now but point being, giving yourself permission to do these things is huge. Even when you don't have a diagnosis! Your words couldn't be any truer and patients/people need to hear them and realize it is okay to set everything else aside.
I have not been officially diagnosed yet. Hematuria 4 weeks ago, tumor found by CT scan 2 weeks ago, met with urologist 1 week ago, cystoscopy 1 week from today, TURBT to be scheduled shortly after cystoscopy. Have had so many other symptoms for quite some time now and in retrospect it all adds up, but holding onto possibility that tumor is benign. If not, as my urologist told me, we know the tumor has not gone through the outer layer of the bladder and he feels we have found this early enough! Best thing out of all this is, I finally have evidence that tells me I wasn't crazy and now I know what I'm fighting.
To TeaLady24, stay strong, fight through, prayers and thoughts to you!