I had a urostomy done about 4 weeks ago, for aggressive/muscle invasive bladder cancer.
My only real problem at the moment concerns night bag system kinks/leaks.
During the day, i use either a one piece pouch or a one piece pouch with a leg bag (all Hollister). These options have been working great, with very few surprises/leaks (I did have a Hollister pouch fail during the day yesterday, which did confirm the need to always carry a spare and a change kit when away from the house).
However, 3 times in the last 1.5 weeks, I have had a leak/kink/failure in my night bag system. This night bag system attaches to the bottom of my one piece pouch. 3 times I have woken up with the night bag system tubing twisted far enough to kink the bottom of my pouch sufficiently to completely block all urine from entering the night bag tube, leading to a back-up and wet bed/pajamas/changing my pouch, etc. I believe this is because the night bag tube (and connected night bag) are a lot less flexible than my one piece pouch.
I have been underwhelmed by the lack of useful advice I have received my my wound/ostomy care nurse at my health care plan facility, although I do plan on circling back to them on this. If they gave any very useful advice on this, I missed it. However, based upon my experience, i assume this is a universal issue for all urostomy people, so I do think there must be useful solutions out there.
I did try a "Hold-N-Place Foley Catheter Holder Leg Band" to try to keep the night bag system tube aligned appropriately with the one piece pouch, to avoid kinking of the pouch. It worked one night, but failed the next. Not good enough.
I have requested a sample "urostomy night bag" from Coloplast, which comes with "anti-kink tube" and sounds promising. I got the sample, and my first challenge is that the Coloplast tubing system/size is not easily compatible with the Hollister tubing size. I will have to work on this.
in the mean-time, I have been back to using the "Hollister day bag" system with my one piece pouch. The Hollister day bag system is not enough to get through the night, and I would sure like to not have something like it attached to my leg while sleeping. However, it is working and not leaking/kinking/backing up.
Any thoughts on solutions to what has to be a universal urostomy issue are very welcome to this newcomer.
Hope I can help. I'm 11 months post RC with ileal conduit. I am using a 2 piece Convatec appliance without Eakin seals and it is lasting 1 full week. To date, I have not had a failure of the bag or any flange leaks, except for the time I caught the bag in my zipper. D'oh!
At night, I too use the Hollister night drainage bag with the adapters supplied by Convatec. I'm getting 2-3 months out of the night bag (rinsing it daily with hot water) but I change the adapter monthly. I hang the bag on the side of the bed using a plastic hanger stuffed between the mattress and box spring. I run the night bag tubing under my left leg and between my legs to the appliance. I sleep on the left side of the bed, so it's reverse if you sleep on the right side. I pull some tubing to create some slack and find that my left leg holds the tubing in place. I'm a side sleeper and roll back and forth all night switching sides. No leaks or backups to date.
I did find that I have to prime the night bag as I get into bed. That is to leave your bag 1/3 full of urine, connect the night bag, open valve and squeeze the urine out of your pouch to fill the tubing. Works like a champ and I rarely have a full bag develop.
I suspect that some of the issue you are seeing may be from the 1 piece system. I prefer the 2 piece with the convex moldable adapter flange. Early on, I used Hollister products, but just couldn't get comfortable with them, but for no specific reason.
I'm certainly glad to speak with you directly if you have any questions. ]Sorry it's taken so long to see your post... Not passing by the forum as often is I should.
11/30/2015 Left nephrectomy
2/17/2016 left ureterectomy
8/10/2016 cyctoprostatectomy w/ileal conduit diversion
Cancer free since!
Last edit: 3 years 10 months ago by sara.anne. Reason: Sorry, but we can't post personal information such as email addresses and phone numbers for security/privacy reasons.
I use coloplast 1 piece with cardinal health 18” extension tube. I went to Home Depot and bought several hose barb splicer, 3/8” ID brass, to connect the extension tube to the bard night bag. Use hot water to soften the tube ends. Use the connectors supplied with coloplast pouches. I also tape the connections with 3M Scotch 88 electrical tape to prevent leaks. Cheap and totally leak proof. Easily last me 60 days. Clean daily with Sams club disinfectant yellow diluted 50% with h20. Same with leg bags.
I am a roller and sleep both left and right side. I hate changing bed linens at 2 am, lol.
Since I made that post several years ago, I have started using one Coloplast Elastic Barrier Strip, in addition to my Coloplast urostomy pouch.
I apply the Elastic Barrier Strip on the side of my abdomen that is next to my belly button, farther away from the edge of the bed. This overlaps the urostomy pouch and provides additional sticking/staying power. (It does expand the area that I need to shave a bit)
I change this at the same time as I change my urostomy bag.
It works great - I have not had any night-time failures or leaks in the last 2 years plus since then.
I wish the health care wound nurse people had mentioned this idea to me initially after my surgery - my only complaint.