A big hug to everyone here. Sharing your experiences hav been helpful. My dad has bc diagnosed in early march (66 y.o. very fit n healthy, no health problems, never surgery, never smoker) with last report from mskcc saying:
Tumor type: invasive uro. carcinoma, NOS with focal micropapillary features
Histologic grade: high grade
local invasion: lamina proporia
muscularis proporia: not identified
vascular invasion: not identified
We live in the Caribbean n had done turbt there and started cis/gem 2 cycles done and 1 to go and headed to mskcc for RC hopefully. Report also says :there appears to be a good response to chemo with likely residual disease" and "very small focus of persistant disease adjacent to site of previous resection"...
We've gone to thinkin that it was T2B -> T3-> T2A->T1 w/micropap feat... first biopsy at home did not identify micropap...
Questions? 1. the nurse at msk explained that invasion is shown in LP and not MP or VI...does "not identified" mean that? that it has not invaded that area and therefore T1H3?
2. Angry, terrified and hopeful at same time to hear "micropapillary".... after consulting on this, dr. says complete 3 cis/gem neoadjuvant and then look to RC/Bladder sparing (tho I strongly believe RC is better for life preservation and spread)...what do you guys think of plan?
Has anyone had similar experience? does the word "focal" in micropap mean something worse or slightly better?
Thank you so much...I am determined to fight this BC with my dad and become a success story and help others...mark my words;)