Ben\'s Chapter One - Partial Cystectomy

Mark - good point, I changed the name! AND I hug my kids all the time and I noticed I tell them I love them many times a day now instead at bedtime.

Catherine - thank you for sharing your links. I'm trying not to get too excited about all this yet but it does feel good at the moment. When reading your early experience it's exactly how I have been feeling. I'm sorry you had to fly solo. I appreciate you passing on all this to me. I am so ready to get on with this. The worst part is all this waiting. I would really like to know what type chemo I will be given and for how long etc etc.

Thanks and have a great Sunday!!!!!

Hey Ben. This should be called Chapter One.

Because I have a feeling and a sincere hope that this is going to be a very long and wonderful book about how you won the battle against BC.

Remember to hug and kiss those dang kids.

Mark

Ok I just got back from meeting with Dr Bullock. He put a new twist on all this. He says because of where the tumor is located (in the top) I would be a good candidate for a PC. He recommends seeing the chemo doctors next week. Do another scope and take 3 biopsies to make sure the lower 2/3rds of the bladder is tumor free and when the chemo treats are done go in and take off the top third of the bladder. Two+ hour operation and 2 days in the hospital. If he gets in there and see's anything he doesn't like I could still end up with the RAC and neobladder.

Post surgery - scope every 3 months for 2 years and then on a 6 month schedule.

If a tumor comes back then RC with neobladder.

So all that got me in a spin and now I need to make a list of new questions but its worth a shot. He said very few people have tumors in that area so PC normally isnt an option.

Here I go on another weekend of research! Cheers