5 things I wish I knew (invasive)

umm..here goes:

Was originally told "don't worry - it's just a small tumour. We'll scrape it out and check up on you regularly for years and years." Well - guess what? it wasn't! Wish I'd known that to begin with!

Wish I had known more about the bladder sparing options available once the eventual diagnosis of urachal adenocarcinoma was given.

Wish I'd known about this wonderful site. Found it after the neobladder.

There are probably more but you need bear in mind that we only tend to remember 2-3 key points we are told at appointments. I have found this to be true from both a professional view and as that of a patient.

Sure many more will chime in with their thoughts.

Betsy Mae