Hi Mznoregrets and Leigh
Thanks for your replies, it is very comforting to know there are folk out there who understand.
I guess I have painted myself into a corner a little, in that only my husband and I ( and a thousand health-care professionals) and you guys know.
When I was first dx'd my overwhelming feelings were for how my children and elderly parents would cope. After much talking, thought and prayer we decided not to tell them until such time as it was not possible to do anything else (please dear Lord that day doesn't come). My eldest was just about to take very important exams and my youngest was just going into adolescence. So as far as they know I have had a hysterectomy and bladder repair, and they surely both happened!!
Anyway in some ways this has been an immense blessing - I have been able to put back on my real identity, mum, daughter, friend, without having to worry about the burden my kids would have to carry. However because the longer I am way from my op, the more time you have to reflect how exquisitely precious life is and it becomes more valuable each day. I want to hope that I see my eldest graduate, and see my youngest fulfill his dream of being a marine, be able to walk again in the hills of Scotland where my heart is, but I daren't. My consultant gave me a poor prognosis, but said if I made it to one year with a clear CT scan that my chances improved to 85%. I feel like I am tempting fate to push back and say, right that's that done with.
Oh dear, there are so many brave and inspirational posters on this forum I feel ashamed of myself - I think I need a good kick up the wotsit and just to get on with living as the man said!!