Hi,
There are not any others on the board at this time with adenocarcinoma or who've had partial cystectomy, I'm pretty sure.
I was glad to read that you are seeing Kamat, as he specializes in rare tumors. You couldn't be in better hands (and please give him my regards, he is an adviser for this website).
I have known people with adenocarcinoma of the bladder, treated with BCG and clean 10 yrs later! And although partial cystectomies aren't all that popular (usually), the location of your tumor was the perfect place for such an operation (bladder dome, singular tumor), so I would be confident that with close follow up and Kamat on your side that you can get old and die in your sleep.
Happy Thanksgiving,
Wendy