Key Concerns about research for Bladder Cancer

Julie and Pat,

There are plans in place to do many of the things you are talking about. As you know we are a young organization we only incorporated in 2008 and it has to be a step at a time. Right now we are in the middle of doing a redesign of the site. Once that is up we will be starting our advocacy advisory work group. I hope that all of you that have the same commitment that we do to blc will join us. As for donations we had to wait until we received out 301(c)(3) status and work out the law situation in all fifty states before we could start raising funds. That has been done and a donate button will be on the updated site. There is also money in this year’s budget for a brochure and as part of the advocacy work group I will ask that they set up a subcommittee to help develop it from a survivor’s point of view.

We are having our annual board meeting this weekend where we will be projecting this year’s goals and how we plan to reach them. When you look at the ABLCS as it is now realize you are only looking at the tip of the iceberg. As soon as the new site is up I will be starting a Presidents post to update as well as a opt in newsletter to give everyone an chance to be a part of what we will become.