I had a bad experience with my very first BCG. The BCG somehow got absorbed into my prostrate and i had a terrible prostatitis and pain for about 3 months. The urologist then stopped the BCG and six months later started dozing my bladder with motocitin.
About a year later the urologist did a prostrate biopsy on me, and they still found traces of BCG in my prostrate.
Another urologist then tried the BCG again on me, but this time left the catheter in until i emptied my bladder. The catheter acted as a seal between the urethra and the prostrate, and this time it worked ok, no side effects.
Now there is a big shortage of BCG globally i beleive. We have not got any here in South Africa in the last 6 months.
Now they are picking up cancer cells again in my urine with the urine cytology, but when they do a cystology (bladder inspection) they are not finding the source.
So now i have just been living with it for the last 2 years and i am feeling fine.
Hi Bill, Glad to hear things went well for you. My fourth treatment went pretty much the same as the first 3. I have now had 4 treatments, and each time a different nurse doing it, but as usual, I checked my dignity at the door. lol I consider myself lucky that I have not experienced the nasty burning side effects. I did buy the AZO as well, but have not had to use it yet. I also experienced mild headaches following the treatments. I am back at home now from traveling, but do feel quite fatigued. Sounds like you got the routine right. I hope your next ones go as smoothly. We're all in the midst of some scary shit, but having a place to air it out and ask questions or advice does help. Keep the faith!
So, it was actually no problem. Took an AZO and started drinking water about 15 minutes prior to my first void at the 2 hour mark. No burning...nothing. Drank 3+ bottles of water over the next 5 hours. No urgency, no pain. Bright orange urine from the AZO. Slept well, maybe just a bit of a headache and very minimal fatigue this morning. Feel well enough to get out and snow blow the driveway soon. So, pleasantly pleased. I know that treatments tend to get more difficult as time goes on, but hoping I'm one of the ones that handle it well.
@Alkamodadd, thank you for being here. I hope your 4th went well.
Hi Bill, sorry for your diagnosis. I am having my fourth BCG treatment today in about an hour. They have been remarkably tolerant so far. Eddie has been a great resource. I am dealing with Nmibc and Carcinoma in situ. Good luck with your first BCG. For me the hardest part continues to be the catheter insertion. Hope all goes well for you.