The standard of care by the URO Association (someone can correct me if wrong), is 2 years of 3 monthly checks, year 3-4 is 6 months and then yearly. None of us are doctors so take anything I am going to say later, take it with the ole "grain of salt" saying
First, high grade does need a close watch. How big was the tumor? Mine was .5CM which is considered small. My URO did 3 months for 18 months, did every 6 months for the next 12 then yearly. His reasoning was there are also some small risks on these cystoscopies. Scarring, infection etc (I did get an unusual UTI on about my 6th scope). So, as we collaborated that is what we agreed to. Cytology, while not perfect, for every 6 months was also our protocol. Now it is every 12 months. They are notorious for false positives so take that for whatever that is worth.
I have learned, be informed, listen to your body and at some point, we have to trust our providers. This also means you can differ with them and chart your own course. I add that Stanford has a great reputation in urology. pat yourself on the back. It is good to be an advocate for your Dad.
