All
I wanted to provide a bit of update to the forum.
I have spoken with my family and come to an initial consensus of terminating my participation in the SWOG clinical trial.
I have since read through the study documentation (
www.ClinicalTrials.gov/S1602) as well as the consent forms and found that indeed, the dosing can be reduced down to 1/100 of the full dose.
I have been in contact with the research coordinator here in Boise and he has forwarded my emails on to Dr. Brassell and will be at my appointment next Wednesday September 30, 2020 in order to help express my concerns, needs, etc.
There are four reduction levels possible within the trial 1/3 (26.67 mg). 1/4 (20 mg), 1/10 (8 mg) and 1/100 (0.8 mg) - my hope is we can go all the way down for this final maintenance round and see about increases in 6 months at the next scheduled maintenance round.
Thank you all for your input as this is what helped me to do the digging and find out what options I have to stay in the study (it is covering the cost and availability of the Tokyo BCG) for the entire course so that I might have the greatest overall outcome possible.
I will keep providing updates as things progress.
Ciao