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Anyone else getting Tokyo BCG?

5 months 2 hours ago #59088 by Knifedealer
No, I'm not involved in the trial. Are you going to MSK for these or are you still being seen at Strong? Just curious. I lived in NYC for many years (after graduating from Brockport) before moving back to Central NY. I know the drive well.

How have you been sleeping lately?

Finally, with respect to your question regarding long-term disability eligibility, I'm 63 and retired after a 30 year stint working for Uncle Sam. I'm not eligible for long-term disability.

Best to you.

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5 months 5 hours ago #59081 by Shacky73
Yes Phase III trial is to get Tokyo version approved in US and see if priming dose a week before induction helps with response.

So there are 3 groups:

Merck TICE BCG as usual.
Tokyo BCG with typical TICE protocol
And Tokyo plus prime injection one week before

T1 Grade 3 with CIS

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5 months 5 hours ago #59079 by Regor
I've always thought there was only one BCG manufacturer for the USA- Merck. I guess with a study they get around that?

TURBT Jan 2019; Diag: CIS
Induction BCG (Mar 19) /Maint BCG (Aug 19)
TURBT Nov 2019; Diag: CIS
Repeat Induction BCG - Jan 2020 Complete

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5 months 18 hours ago #59075 by Shacky73
Had my second dose Tokyo BCG yesterday. Urgency and burning more that first dose last week. Blood for couple hours after and either clots or tissue occasionally.

I read the Tokyo version has a higher amount of the BCG bacteria. I’m in clinical trial and in leg that gets standard treatment with Tokyo BCG - no priming.

Anyone else getting this?

T1 Grade 3 with CIS

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