New and in process

1 year 3 months ago #58972 by sunshinem
New and in process was created by sunshinem
I had my first cystoscopy last week. Dr. did not complete a biopsy; however, said the lesions appeared to be classic bladder cancer. I have 2 small flat lesions and 1 formed (which also showed on CT). Dr. says it is an early diagnosis and lesions are "small". In my research, I am seeing flat cancer, if noninvasive, is CIS and typically requires BGC post TUBTR (scheduled for surgery next week). If the lesions are very small is it more likely to be non-invasive? Does it always require BGC after TUBTR? Can I have BGC if I have had a positive TB test but negative TB chest xray? I have so many questions...……

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1 year 3 months ago #58974 by Jack R
Replied by Jack R on topic New and in process
Sunshinem,

Welcome to the group. Not that you really wanted to be here,

First, Caught Early, the outlook for treating bladder cancer is very good. That's a real plus for you !

It will be a couple of weeks before you have a good handle on your situation - you will be waiting for the pathology report from the TURBT - that is when you learn just what is going on, and further plans can be made. Try to relax while you wait - the waiting can be very hard.

A good site for basic information - info that goes FAR beyond where you are now, run by the NIH and helping people to understand specific types of cancer.

www.cancer.gov/types/bladder

Specific questions - such as BCG use - need to be asked of your care team - they can give correct answers based on YOUR specific medical history.

Best,
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021

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1 year 3 months ago #58976 by DougG
Replied by DougG on topic New and in process
Sunshine,
I love your user name. You have asked some excellent questions and appear to have done your homework. My husband was diagnosed in 2001 and is doing well. There have been some bumps in the road, but you can see that early diagnosis does help! Best wishes for good outcomes for you. Please let us know what your doctor says about BCG and the positive TB test. That is something I have not heard asked.

Anita
Forum Moderator
Caregiver

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1 year 3 months ago #58981 by sunshinem
Replied by sunshinem on topic New and in process
Thank you very much! I appreciate your response. I am glad I found this site :)
The following user(s) said Thank You: TaraRain

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1 year 3 months ago #58982 by sunshinem
Replied by sunshinem on topic New and in process
Hi Jack,
Thank you for your response. I am happy I found this group and maybe it will lend to some support. I am a dialysis nurse by profession. It is a different feel to be on the "other side" of the health system. I know that ultimately I need to wait for pathology to receive and accurate diagnosis. I wonder how often flat cancer appears to be flat cancer by is cystitis? Maybe wishful thinking. lol

Thanks for your support- I am glad to hear you are cancer free!

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7 months 4 weeks ago #59860 by stellaa9x
Replied by stellaa9x on topic New and in process
Thank you very much :) I am glad I found this site

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