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Low grade urothelial carcinoma

3 months 3 weeks ago #59547 by JIMG4
Jessica

sorry to hear that your dad has bladder cancer. It is scary, but know that there is a community hear that will listen and offer up any advice or help they can!

The good news is that your dad's cancer is a good type of cancer of the bladder, if that makes sense. Meaning very treatable with good long term results. The not so good news is that it has a good chance of recurrence. But again, if caught early very treatable! So, the follow up plan is imperative and needs to be followed to the T. He needs to go to all the scheduled cystoscopies as they are the best tool to catch any recurrences as soon as possible!

Like your father's doctor has already suggested...... 3 months, 3 months, 6 months, 6 months, 9 months, 9 months, annually annually annually!! Very important to get it done.

Good luck, prayers, stay in touch and keep us updated! STAY STRONG!

10/25/18: TURBT
11/06/18: DX Ta - low grade non-invasive TCC
07/07/20: Recurrence. TURBT (07/30/20)

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3 months 3 weeks ago #59529 by New2Group
Jessica,

The doctor will probably want your father to come in for a Cystoscopy every three months for a couple of years, then every six months for a year, or so, then on a yearly basis.

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10 months 2 weeks ago #58769 by DonaldK
Jessica

Doc was shocked that the initial was low-grade - 40yr plus smoker, recovering drug addict and alcoholic.

On the second TURBT, she found a tumor that was not seen the first time round, hidden up high on the dome of my bladder.

Prolly had been there longer???? So more time to transform from low to high.

I've had major hypospadius repair surgeries since childhood so there was some difficulty in viewing the entire bladder the first go round. Luckily the OR tech for the second round was the same one as the first, Doc & Tech were able to remember the moves they did and repeated (doc provided visual ques of pushing and shoving) :laugh: to better visualize the bladder.

I am grateful they found the second tumor as I started in on treatment.

Ciao

Hi Grade T1 CIS

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10 months 2 weeks ago #58768 by Jessica0927
Thanks. Of course I’m reluctantly optimistic. Any idea why yours changed to high grade after 6 weeks??? That’s scary but sounds like you are doing ok. We see the doc on Wednesday so I’m sure we will have a better idea then. Thanks for your response.

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10 months 2 weeks ago #58766 by DonaldK
Jessica

That is fantastic news.

I had the same initial diagnosis. Treatment was to be monitoring for re-occurrence

Doc had me back in about 6 weeks later to ensure all tumors were remove.

So this may be how they go about treating your pops.

My second TURBT was not so good, but please do not take my outcome to be the same for you dad.

This is an excellent place to ask questions/vent/cry/seek hope :)

Best of luck to you and your father as you progress.

Hi Grade T1 CIS

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10 months 2 weeks ago #58758 by Jessica0927
My dad had a TURBT last week and the path came back as low grade!!!!

Non invasive low grade urothelial carcinoma.

Architectural: papillary
Flat carcinoma in situ: not present
Lamina propria: present but not involved by Tumor
Muscularis propria: present but not involved by tumor

Thoughts??????? I’m thinking this is good news. Do they do any further treatments for this!???? What’s the risk of recurring or progression????

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