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4 months 1 week ago #57742 by Alan
KS,

Welcome! 1st, always remember this is treatable and beatable. By high grade, lamina propia invasion are you saying it has hit into the muscle layer? There is a wealth of information on this web site including past discussions on many variations of this disease.

The reason why I ask about grade and stage, there are different protocols if the tumor has not hit the muscle vs invading it. Please keep posting...someone should be able to add as I will be tied up almost all day. Also, none of us are doctors just "experienced" bladder cancer survivors.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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4 months 1 week ago #57741 by KS
I had surgery two weeks ago and they removed a tumor and a stone From reading the results in my chart I found out it was HIGH GRADE PAPILLARY UROTHELIAL CARCINOMA and INVASION of the LAMINA PROPIA. Yesterday at the post op follow up I was told that I would need chemo and maybe radiation. My mom went with me and she did most of the asking. I basically sat there and listened. As a nurse, I should have been asking questions and been more involved with the visit, but today I was the patient and just listened.
Why am I not feeling concerned about this? I haven`t paniced, I havent cried and I haven`t had it invade my brain. When I told my family, it was like discussing the weather for me. Is this a normal reaction to this type of news? I was not surprised by the findings or the news of treatment. It`s almost as if this is no big deal to me. Am I in denial? In shock? Shouldn`t I be feeling something? Fear, concern, worry? Is this normal to simply not have any reaction?

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