Welcome! 1st, always remember this is treatable and beatable. By high grade, lamina propia invasion are you saying it has hit into the muscle layer? There is a wealth of information on this web site including past discussions on many variations of this disease.
The reason why I ask about grade and stage, there are different protocols if the tumor has not hit the muscle vs invading it. Please keep posting...someone should be able to add as I will be tied up almost all day. Also, none of us are doctors just "experienced" bladder cancer survivors.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
I had surgery two weeks ago and they removed a tumor and a stone From reading the results in my chart I found out it was HIGH GRADE PAPILLARY UROTHELIAL CARCINOMA and INVASION of the LAMINA PROPIA. Yesterday at the post op follow up I was told that I would need chemo and maybe radiation. My mom went with me and she did most of the asking. I basically sat there and listened. As a nurse, I should have been asking questions and been more involved with the visit, but today I was the patient and just listened.
Why am I not feeling concerned about this? I haven`t paniced, I havent cried and I haven`t had it invade my brain. When I told my family, it was like discussing the weather for me. Is this a normal reaction to this type of news? I was not surprised by the findings or the news of treatment. It`s almost as if this is no big deal to me. Am I in denial? In shock? Shouldn`t I be feeling something? Fear, concern, worry? Is this normal to simply not have any reaction?