Scared

3 years 10 months ago #53625 by Yentley2017
Scared was created by Yentley2017
I'm a 38 year old non smoker. It started as what I thought was a UTI a few weeks ago with one incident of visible blood in my urine and a deep aching pain. I was given antibiotics which seemed to relieve the pain but they still recommended more tests. I had a cystoscopy today and now have a CT scheduled for tomorrow. The cystoscopy showed visible papillary tumors. I'll be scared until I know how bad it is. I just need to be here to support my family. That's my biggest fear.

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3 years 10 months ago #53626 by sara.anne
Replied by sara.anne on topic Scared
Welcome to our club,which you really didn't want to join! We have all been where you are now.

First thing to remember is that, when caught early, bladder cancer is highly treatable. You really won't know what you might be facing until the biopsy is done and the pathology report is back. The waiting and the uncertainty are the worst part.

I was diagnosed with high grade bladder cancer almost nine years ago and, after receiving BCG treatments have been totally cancer-free.

Please feel free to ask any questions you have or that may come up and we will try to answer.

Wishing you all the best

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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3 years 10 months ago #53630 by Alan
Replied by Alan on topic Scared
Yentley,

I was in your shoes 9 years ago. The good news is this disease is very treatable and beatable. You are also getting the right tests to DX things. CT scan and scope. IF what they see is a growth they will do a TURB (trans urethral resection) basically a cutting or burn to takes samples for pathology. Many times a second is done to be sure the "margins" were done correctly. You really won't know much until the first two tests are done and then the TURB with pathology is done. One day at a time is what I have learned.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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