Bladder Removal Surgery

4 years 6 months ago #52481 by Home
Bladder Removal Surgery was created by Home
I am scheduled for bladder removal surgery. Can anyone relate their experiance with the
surgery and the recovery.
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4 years 6 months ago #52482 by sara.anne
Replied by sara.anne on topic Bladder Removal Surgery
Sorry to hear that you will need this surgery, but glad to welcome you to the Forum.

Your question is not a simple one to answer. What you might expect depends on so many factors. What type of diversion is your urologist planning to do? Your overall health and condition prior to the surgery.
It is major surgery and there is quite a recovery time, as well as training for the "new normal."

The MOST IMPORTANT FACTOR IS THE EXPERIENCE OF THE SURGEON. This cannot be stressed enough. There are a lot of discussions under the Forum topic
"Invasive" below. One recent one that may be of interest to you is

bladdercancersupport.org/forum/5-invasive-bladder-cancer-questions-and-comments/45337-biopsy-report-chat-day-not-what-we-had-hoped

A good discussion of the types of diversions

my.clevelandclinic.org/health/treatments_and_procedures/hic_Urinary_Reconstruction_and_Diversion

Please feel free to ask any specific questions you might have

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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4 years 6 months ago #52490 by Home
Replied by Home on topic Bladder Removal Surgery
I am havine my surgery at KU Medical Center Kansas City KS. Dr Eugene Lee is the surgeon. I will have stoma with an ostomey bag.
Any info you have on KU or Dr Eugene Lee would be helpful.

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4 years 6 months ago #52491 by sara.anne
Replied by sara.anne on topic Bladder Removal Surgery
I have no personal experience with Dr. Lee. From his information on the Univ. of Kansas Medical School web site, he seems qualified to treat bladder cancer.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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4 years 6 months ago #52500 by aseldin
Replied by aseldin on topic Bladder Removal Surgery
I have been diagnosed with stage 2 musssel invasive high grade bladder cancer in October of this year.
I have visited three Urologists. All three have recommended chemo and then surgery. Can I send you the three doctors that I am considering and get your opinion. thank you.

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4 years 6 months ago #52502 by sara.anne
Replied by sara.anne on topic Bladder Removal Surgery
So sorry to hear your news. But you are doing the right thing by seeking second opinions on your course of treatment. I am afraid that we are not in the business of recommending doctors....we are not physicians, just survivors and caregivers.

However, I can give you some advice...and it is worth what you paid for it :laugh: The most important thing in picking a surgeon for a complicated surgery such as this is his EXPERIENCE. You need to ask how many of these surgeries does he do in a year? Five or ten is NOT enough. He should do at least 100 or so. What options does he offer you?
There are three potential types of diversions that a patient could have

(Here is a good summary of them
my.clevelandclinic.org/health/treatments_and_procedures/hic_Urinary_Reconstruction_and_Diversion )

Sometimes a patient's condition or the location of the tumor prevents all of these from being options, but you would want to know why only one is offered if that is the case. Many general urologists have only been trained to do an ileal condiut. If that is what is suggested for you, you want to be sure that it is because it is medically indicated and not just because that is the only one the surgeon knows how to do.
One type is not necessarily any better than any other....it depends on the patient and his condition and his wishes.

How do you determine how many a urologist does and what options he is qualified to perform? YOU ASK. Sometimes patients are sort of in awe of a doctor....don't be. You are paying for a service and, just like anything else you buy, it is up to you to find the very best place to spend your money!

If at all possible it is better to be treated at a large institution such as an NCI-designated cancer center or a university/medical school center. These places are much more likely to be up on the most current medical practices.

Then, the final and most important criterion is that you feel comfortable with the doctor and the situation.

Hope this helps a bit....and wishing you the very best

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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