Newly diagnosed, T1 mixed grade

5 years 4 months ago #50179 by Smayco
Newly diagnosed, T1 mixed grade was created by Smayco
Hello all, I'm new here; this is my first post.

I went to see my PCP in November only because I kept seeing foam in my urine. He sent me for a kidney ultrasound and they found a 4cm bladder tumor. I was diagnosed with BC on 12/15; it turned out to be T1, "mostly low grade, some high grade areas".

After all the reading, worrying, and thinking I've been doing these last few weeks, I think I've come to terms with a) having cancer, b) possibly having it come back, and even c) having it progress to where I need a new bladder. However, I'm freaking out over the possibility that it could become even worse than that.

My Uro is treating this as though it were high grade, so with a 2nd TURBT and a course of BCG, my understanding is that my chances of survival are quite good, but I'm still very worried. Any stories of encouragement would be greatly appreciated!

~Sue

Diagnosed 12/1/15
First TURBT 12/8/15
T1, "predominantly low grade, some high grade areas"
Second TURBT 12/29/15
BCG Jan-Mar 2016
4/25/16--All Clear!
Next cysto 7/25/16

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5 years 4 months ago - 5 years 4 months ago #50184 by CatherineH
Replied by CatherineH on topic Newly diagnosed, T1 mixed grade
Hello Sue... Welcome to our forum. It's always a huge blow to hear that diagnosis for the first time. It does take some time to come to terms with it and the changes it brings into your life. The better side of your situation is that it is mostly T1, but any hint of high grade needs to be addressed which your uro is doing.

We have several members here who have been through treatment for high-grade diagnoses. I'm sure you will hear from some of them soon. As you said, you already know that it can come back, and that it could even mean losing your bladder at some point in the future. If possible, don't let your mind take you any further than either of those outcomes. Bladder cancer is very treatable and your uro is on target with doing a 2nd TURBT followed by the BCG.

It is a learned skill, but taking things one day, one week, or even one month at a time is helpful. I was the same way in the beginning with jumping to the worst possible scenario. That was almost six years ago, but the folks here have helped me stay focused on living each day, and NOT to let bc take my mind hostage. It takes a while to adjust to that, but you will get there. Hopefully we can help along the way.

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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5 years 4 months ago #50186 by Flamenco.
Replied by Flamenco. on topic Newly diagnosed, T1 mixed grade
Hi Sue, I was diagnosed with a 3.5cm T1 high grade in 2006 and am still here and clear at the moment.I am looking forward to Christmas, which is something I never imagined I would be doing nine years down the line after diagnosis.As time goes by the ability to accept and cope with things becomes part of life, but Catherine is spot on with her advice to focus on living each day- my motto is "make every day count".There are still times when the C word creeps in to your mind , especially when it is getting close to check up time, but it becomes easier as time goes on. In the early days I found going to the gym helped- I felt I was doing something to help my body kick the bc.And coming on to this site definitely helps - not just for the information , but for the great support from others who have been in the same boat.
Diane

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5 years 4 months ago #50187 by Smayco
Replied by Smayco on topic Newly diagnosed, T1 mixed grade
Catherine--thank you for your words of encouragement. I take it that you've been cancer free since 2010?

Diane--thank you as well. I take it yours never came back? If it did, did it ever progress?

There's another Forum and it seems like everyone on there has had progression. However, I'm thinking that many of those who don't recur or progress, and are actually cured after BCG, leave the board at some point and "forget" all about BC.

Diagnosed 12/1/15
First TURBT 12/8/15
T1, "predominantly low grade, some high grade areas"
Second TURBT 12/29/15
BCG Jan-Mar 2016
4/25/16--All Clear!
Next cysto 7/25/16

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5 years 4 months ago #50189 by Flamenco.
Replied by Flamenco. on topic Newly diagnosed, T1 mixed grade
Hi, I had a recurrence in 2012 , this time there was evidence of CIS, so following a TURB I had treatment with BCG, and have not had any recurrences since then.
Diane

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5 years 4 months ago #50192 by GKLINE
Replied by GKLINE on topic Newly diagnosed, T1 mixed grade
Hello
I remember when I got the news........ I FREAKIN Freaked out!
I was all set to start makin plans for the end.
BUT I didn't!
I wanted to live............ And so did my Dr and my wife.
Even though I skipped the BCG treatment and went directly to RC(bladder removal)
I found this site to sound off.... And I found some really good listeners, and smartasses too.. I loved them all.
So here we are. Just like you. We are just on the other side of cancer.
And soon you will be too! I just have that feeling, you know? Please use this site to let it out and we will give you all the support and help we can.
We will also be glad to be a smart ass too (well, not all of us.... just me)

Best of luck! And Merry Christmas. Happy Holidays!

This is the season for Survivors

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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