This BCG thing is a real bummer. However, mitomycin C has been successful as an alternate, especially when patients have reactions to BCG. It is used just like BCG....instilled into the bladder....not given as systemic chemotherapy.
You are fortunate to have had the initial 6 weeks of BCG. This is all some patients get, although the maintenance regimen has been shown to increase effectiveness significantly. Mitomycin should be a good follow up.
As for "high risk" with non-invasive superficial bladder cancer, yes...certain types are more high risk. Some tumors are rated low-grade...for many of these BCG is not given unless they return multiple times. Some, however, are rated high grade and these patients usually go right to BCG or Mitomycin therapy. One of the most high grade superficial cancers is CIS (carcinoma in situ).
Bladder cancer is my second cancer, so I can empathize with your feelings. BUT you did receive the initial BCG treatments so you are on the right path!!
Sara Anne