Thanks Sara Anne, I went to the treatment centers link you provided and mine (Siteman Cancer Center in St. Louis) is on the list.
Fighterm, my tumor was in right ureter. When they removed it, that's when they found it in some lymph nodes. I'm hoping you are correct about my anxiety lessening after I hear what oncologist has to say. The waiting and not knowing anything is torture.
I'm still trying to navigate around here -is there a way to read someone's profile?
I am sorry that you have to join our club. As Sara Anne said, it's the most common type of bladder cancer. Is it in your both ureters and in your bladder?
I know you are scared now, but once you see your oncologist and see the treatment plan, it'll be easier. I have two cancers now concurrently and threat them as my doctors plan.
The most common type of bladder cancer is "transistional cell" or urethelial cancer. This arises in the urethelial tissue is, very basically, the tissue that forms the lining of the bladder and adjacent structures such as the ureters. It is the type of cancer that most of us have.
I am very sorry to hear about your diagnosis. Please let us know what the oncologist recommends. This might be a good time to consider getting an opinion at a center that has major expertise in this type of cancer, if you aren't already being treated at one. There is a "treatment center finder"
Does anyone else out there have Urothelial Cancer? Due to tumor in ureter, I had ureter reimplantation surgery 3 weeks ago. 21 lymph nodes removed, Cancer in 2, stage 4 diagnosis. Initial appointment with oncologist not until next week. Hate the waiting. Still recovering from surgery and so scared and anxious..