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it just keeps getting worse

10 years 2 months ago #34816 by robertl
thanks for the moral support. i know i have to go through the tests to get everything right. leaving for my 3rd surgery in 6 weeks in a few minuets. next week mon, wed, fri, mri`s . hope everything goes right. it is nice having someone to talk to that has been there. last year i never thought it would happen to me.

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10 years 2 months ago #34656 by GKLINE

I know that sometimes the procedures for diagnosis are harder than the treatment. Follow Cynthia's advice and get the sedative. Just make sure you have a driver to take you home.

The key to getting the right treatment for your cancer is the right diagnosis. What ever they have to do to get you well is well worth it.

Get a good diagnosis.... get the right treatment.... Get well.



Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
New Man! [/size]

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10 years 2 months ago #34642 by Cynthia

Take a big breath you have to go through this to get the information you need. It is not unusual for people to get panicky in the confined space of an MRI. Ask your doctor if they have an open MRI in your area and if it would work for you. If not explain that they make you claustrophobic and ask for a sedative many people do and ask for them.
Keep us informed we are here for you.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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10 years 2 months ago #34637 by robertl
i was suppost to get my first chemo yesterday but my dr met with me instead to discuss my pet scan results. now were talking stage 4 . having a lymph node removed next week right by where my port is in my left chest for biopsy and scheduled for 3 mri`s of my spine. he showed me the spots and explaned everything to me. at this point i am about at my wits end. i am a big guy and bairly fit in the pet scan now i gotta have 3 seperate mri`s. i get really paranoid and hyper easy.

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