That is great news. Believe me, the worst thing about this situation is the uncertainty. You will be in the BEST place and will get the information a lot sooner. Once you know exactly what you are up against, believe it or not, things will seem better. You can organize your thoughts to face whatever it is instead of dreading the not-quite-known.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
with a little coaxing and reading through this forum, my husband finally decided it was time to not sit back and wait.
He called Dr. Scott McDougel's office at Mass General and at first was told that there were no appointments and that he should have the biopsy and get the results then to contact them and they would get him in if needed. After a little bit of discussion they decided he should be seen and now has an appointment another doctor in the department on next Tuesday, June 1st, and is schedule for the TURBT on Wednesday June 9th.
I definitely feel a lot better about him seeing a specialist and appreciate all the information you have both provided.
Personally i think the time frame sucks...if you had already done the TURB and had pathology back and dependent on what that said its ok to wait up until 3 months to do surgery should that be indicated. But you want to know whats going on in there right now. I would make the call just to see how fast Mass General can move. It took me one week to get into MSK from Ohio for my second TURB.
You do not know whether this is high grade or low grade right now...just because the majority are low grade is no guarantee that it is...mine certainly wasn't and i had but one small tumor barely visable. BCG not given in low grade TO as its not effective against low grade..its more of a watch and wait regimen. If it comes back then thats another story. A re-TURB is always suggested after the first TURB within 6 weeks to make sure all margins have been gotten and no re-seeding. With an NCI center you're less likely to have that happen..better surgeons..better pathologists...more experience.