× Welcome click the New Topic button to post

BCG question

13 years 7 months ago #2545 by mmc
Not much burn at all from the last couple of times. (whew!).

Lessons learned: Next time don't drink ANYTHING the day of the treatment. Start drinking massive amounts of water 1 3/4 hours after instillation.

Thanks again!
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

13 years 7 months ago #2541 by mmc
Well this time there was only shooting pain before and right at the start of urinating. Looks the water is getting through my system and doing its job.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

13 years 7 months ago #2540 by Rosemary
Greg,

You are so droll. ;) Burning with desire...

Your advice sounds pretty right on. I do think, tho, that I would ask the Doc first about the bicarb.
Maybe TB cells work better in an acidic environment. :o

Ro


Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

Please Log in or Create an account to join the conversation.

13 years 7 months ago #2538 by Mike

I burned really, really bad while holding it in, but it was a steady burn, like holding hot coals.  I bled pretty bad, too.


Hi,

this burning, since it is not with desire ;), is something I am pleased I have managed to avoid so far as with pain after TURBT & TURP.

Since the pain seems to be a chemical burn - firstly have you tried drinking SEVERAL pints of water during the last 1/4hr. of treatment to start flushing immediately and frequently after the treatment ends and also diluting the bladder content.

Alternatively or even in conjunction try taking Bicarbonate of Soda tablets to reduce the acidity of the urine your kidneys extract - this might help as putting uric acid into an already tender bladder can hardly be the best of ways to avoid a burning sensation :-/

Good luck - I hope something works.

Regards,
Greg L-W.

Please Log in or Create an account to join the conversation.

13 years 7 months ago #2537 by mmc
Thanks for the replies and ideas. After posting the message, I started drinking water and have taken in 64oz so far. My urologist is only a 10 minute drive so I just come home and we have a bathroom set up and reserved for my use.

My daughter-in-law is pregnant and they visit regularly so we want to keep this BCG stuff VERY isolated.
It also means I can a keep measuring cup and bleach handy in that bathroom. The bathroom is off limits to everyone else.

Still have the shooting pain immediately before having to go (it's only the second urination since starting this). Looked like some blood at the end of it. Not thrilled about that idea because I sure don't want this stuff in my bloodstream. REALLY burned to urinate this time. Hopefully, all this water gets through me quick to dilute this.

Is it ok to take peridium or something to lessen the pain (or do I need to go without in order to tell if there is blood). Doesn't hurt much when I'm not urinating.

I was actually expecting this to be a bit easier because so many folks said the first few were a piece of cake. Oh well....we're all different as they say.

Thanks again for the help. Really glad this forum is here!!!!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

13 years 7 months ago #2535 by Mike
Hi,

Mike - I found the best idea for any intubation where they introduce washes into the bladder that have to be held in was to try to get an appointment for 14.00hrs. (because I've known them years they will fix times if they can  ;) ) I then don't drink ANYTHING from midnight the night before.

I must admit that when I arrive I put a two pint bottle of fresh orange in the nurses fridge and after the treatment is over I drink all of it within about 15 minutes! :o

I always stay in the hospital - pop into a couple of the wards I use and into the urology unit for a chat then read a paper in the canteen until I have had the first 'serious' urination - this ensures that I'm not bleeding and that I use a hospital toilet for any heavily contaminated urine.

This schedule means I'm sure I have no complications and I can drive the 20 miles home without any problems.

Perhaps this sort of schedule might help you.

regards,
Greg L-W.

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add Files.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 121 Guests 

Statistics

Today Total Opened: 0 Today Total Answered: 0 Latest User: Franny1951
Yesterday Total Opened: 1 Yesterday Total Answered: 0
Total Posts: 53790 Total Subjects: 7052 Total Users: 6558