Am just finishing reading a book which came out a few weeks ago that I feel everyone should read:
"Elderhood" by Louise Aronson
Dr. Aronson is a geriatrician and is especially concerned about the treatment of the "elders" in our society, both by medical professionals and society in general. While it does deal primarily with seniors (and senior-seniors) it has a lot to say about medical practice itself with its concentration on "curing and fixing" and ignoring the patient. We have seen some examples of that on the Forum recently.
So even if you aren't yet an elder, you will be sooner than you think. And those with chronic diseases are treated in many ways just as seniors are. In addition if you aren't yet "old" you are probably dealing with parents who are.
I highly recommend this book!!!
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society