A tumor in the renal pelvis found

11 months 1 week ago - 11 months 1 week ago #60367 by Alan
Replied by Alan on topic A tumor in the renal pelvis found
There have been studies with PDF's, and quantifications of bladder cancer size. While I can't put my finger on the latest I remember my URO telling me less than 2 CM was considered small, so 3 CM is not overly large. The bigger issue is still whether any tumor is high grade or low grade if in fact what was seen is a cancer.

Have you had your biopsy yet? It is possible if the spot that was seen is in a difficult place they could schedule a biopsy with a pathologist on standby to read it and if necessary go further? Have you had any scans...CT scan for example? Are you comfortable with what has transpired recently, or do you need a second opinion? Because of your prior recurrence, you want team that is up to speed in everything. These are things you must question with the subspecialist/surgeon. It sounds like no one has actually determined what this growth is. Without a biopsy, it is simply conjectured. You do need to get a move on to get the answers. You know NOTHING at this point (cysts, fatty/benign growths have fooled many).

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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11 months 1 week ago #60366 by gina
Replied by gina on topic A tumor in the renal pelvis found
Is a 3 cm tumor considered large? I feel as Alan does regarding the doctors assessment regarding the tumor he discovered. However, he must “know” something specific from the cystoscope he performed. His referral to the surgeon necessitates a nephrectomy. Is it common for a doctor to recommend treatment prior to a biopsy?

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11 months 3 weeks ago #60296 by Alan
Replied by Alan on topic A tumor in the renal pelvis found
If there is anything that I have learned on medical issues of any type....it is one day at a time ( I know it's hard to do). I am trusting you get a quick answer and hoping for the best.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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11 months 3 weeks ago #60295 by gina
Replied by gina on topic A tumor in the renal pelvis found
This doctor has no doubt this is a tumor, and although I believe he knows he can’t say for sure, he has stayed he believes it’s from the bladder...what his reasons are I do not know. He also said pictures of the tumor were sent to the specialist along with my history. I am thinking it may be a papillary tumor, which is what I had in the bladder. Just my guess, although I don’t know

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11 months 3 weeks ago #60294 by Alan
Replied by Alan on topic A tumor in the renal pelvis found
Gina,

I remember reading threads from you several years ago. I am sorry for the reason for you to re-post.

First, because of one recurrence, it is important to stay vigilant. However, I am not sure how your urologist knows IF what was seen in a diagnostic test (presuming x-ray or ultrasound) is absolutely a tumor much less what type or origin. It does sound like you are being referred out to a subspecialist for a biopsy so that may double as a second opinion. If you have any doubts do your search for any center of excellence and self-refer if you can. A teaching hospital or major cancer with a great bladder practice such as MD Anderson, Sloan Kettering, Cleveland Clinic, Northwestern in Chicago etc. What general area of the country do you live? Someone may have an exact suggestion of where to go. I understand insurance can sometimes cause roadblocks.

While most tumors don't grow that fast, you do want to put this to rest so yes, with COVID and the Holidays I'd move forward. Let's hope this is a false image. Please do ask away as you have more questions.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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11 months 3 weeks ago #60293 by gina
A tumor in the renal pelvis found was created by gina
I have a history of bladder cancer, having one reoccurrence. I’ve been bleeding heavily for almost two years causing my blood count to drop to 4.4! My urologist found a tumor in the renal pelvis, and says it came from the bladder. Am I to believe this is considered a metastatic occurrence? There is yet to be an actual biopsy. I am being referred out of town to a urologist surgeon. How quickly should I be seen by the new doctor? Does this sound like an urgent need?

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