Wife has BC Lymphoepithelioma-like

Sara Anne is offering good advise.

If you go to John Hopkins I would think about talking to Mark Schoenberg he is one of the best in the world if he feels you should talk to someone else he would tell you. His contact information is at this link. He is a Urological Surgeon.

urology.jhu.edu/markschoenberg/index.php

If you go toward Sloan Kettering I would suggest you talk to Dean Bajorin he is a Oncologist and is one of the best in the world.

www.mskcc.org/cancer-care/doctor/dean-bajorin

Good luck and keep us updated.

You are within "spitting" distance of two of the best bladder cancer sites in the us....Johns Hopkins in Baltimore and Memorial Sloan Kettering in NYC. You couldn't go wrong going to either of them for an evaluation and second opinion.

Sara Anne

WOW...that is a rare one! Because of this, it might be a very good idea to get a second opinion at a place that sees a lot of bladder cancer, and might have more experience with this type of
tumor. This does not indicate a lack of respect for your current doctors, but would enable you to gather all the information you could about the situation before making a decision.

Where are you located geographically? Perhaps we could suggest some good places for a consult if we knew where you live.

Sara Anne