Bladder Replacement

15 years 5 months ago #22611 by BJsHere
Replied by BJsHere on topic Bladder Replacement
What's a good time to call you?

Thanks

BJ

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15 years 5 months ago #22606 by Cynthia
Replied by Cynthia on topic Bladder Replacement
BJ,

Please feel free to give me a call I had my RC done by Dr. Stienberg and we stayed in Chicago for five weeks before returning to MA. My number is listed under contact us in the main menu. I think I will be able to answer most of your questions.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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15 years 5 months ago #22603 by BJsHere
Replied by BJsHere on topic Bladder Replacement
I can't thank you enough for letting me know about Dr. Steinberg!
I was lucky enough to see him on Tuesday.

I will be operated on December 10th.

I have some questions for you if you don't mind.

1. What is the University Hospital like?
2. Are the beds comfortable
3. Is the food tolerable?
4. Is there a hotel close by?
I will be staying the night before surgery.
5. What do you recommend I bring?
6. What do you remember when waking up?
7. Did you have a lot of tubes in you?
8. What did you do for your bowels?

I will be having the Ileal Conduit.

I prefer to have the most negative of information and then be able to work back from that.

I do hope you are progressing well.

I did tell Dr. Steinberg how I got there.

Hope you have a Blessed Thanksgiving and a wonderful Holdiday Season.

Thank you again Patricia.

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15 years 5 months ago #22392 by BJsHere
Replied by BJsHere on topic Bladder Replacement
Thank you so very much!
I have emailed him and will follow up with a phone call.

I do hope this finds you doing well.

Warmest regards,
BJ

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15 years 5 months ago - 15 years 5 months ago #22366 by Patricia
Replied by Patricia on topic Bladder Replacement
Here's the best surgeon in Chicago and named as one of the best in the country
www.uchospitals.edu/physicians/gary-steinberg.html
Pat

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15 years 5 months ago #22350 by BJsHere
Bladder Replacement was created by BJsHere
What is the best source for replacing my bladder?
I am a 63 year old active female.

Five years ago lost the right kidney and urether... cancer in urether. This was suppose to be a "one in a million".

Four years ago tripped on the sidewalk and broke my Acetabula (part of the pelvis that holds the hip socket)in four places... again a "one in a million"

While I am still alive and moving on, I would be greatful to any experiences you might have.

I do realize that we must rely on those that have gone before us and you can't change once the choice has been implemented.

Thanks!

BJ

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