Home › Forums › All Categories › Chit Chat › CALL FOR VOLUNTEERS!!

  • Chit Chat

    CALL FOR VOLUNTEERS!!

    Posted by sara.anne on January 5, 2017 at 5:59 pm

    Start of Discussion
    0 of 0 replies June 2018
    Now

    After MONTHS of hard work, particularly by Cynthia and Ed, our new web site is in the early testing stage and should be ready for more wide-spread testing in a week or so. I think it looks GORGEOUS, but then, of course, I am biased!

    We will be needing 10 volunteers willing to “play” with and test all aspects and get the bugs out of the site before it goes to prime time. If you would like to help us with this, please send your contact information (email and telephone number) to Cynthia:

    cdkinsella@bladdercancersupport.org

    and we will contact you to give you your assignments.

    Please be assured that we will NOT make your contact information public in any way.

    Thanks for your interest!!

    Sara Anne

    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator
    catherineh replied 7 years, 5 months ago 3 Members · 3 Replies
  • 3 Replies

  • catherineh

    Member
    January 12, 2017 at 1:01 am

    Hi Sara Anne… I just emailed Cynthia asking to be added to the new site. I got an email from the new forum and could read posts but couldn’t log in. It looks really nice.

    Best wishes… Catherine

    TURBT 1/21/10 at age 55
    Dx: T2aN0M0 Primary Bladder Adenocarcinoma
    Partial Cystectomy 2/25/10
    Vanderbilt Medical Center
    Nashville, TN

  • sara.anne

    Member
    January 12, 2017 at 12:55 am

    Thanks, Jack.

    Sent some info to you via your “email of record” here….a comcast one.
    If that isn’t correct, please email Cynthia cdkinsella@bladdercancersupport.org
    and correct it for me

    Sara Anne

    Diagnosis 2-08 Small papillary TCC; CIS
    BCG; BCG maintenance
    Vice-President, American Bladder Cancer Society
    Forum Moderator

  • jack-r

    Member
    January 12, 2017 at 12:12 am

    Sara Anne,

    I am feeling guilty not offering to volunteer to help test software.
    I just finished a week in the hospital and have at least 3 weeks of half days at infusion therapy ahead.

    I can’t hold a schedule now, but is any less formal way to assist ? An alternate site to “play with” or such ?

    Thanks to those who maintain this site; we appreciate yuor efforts.

    Best
    Jack

    6/2015 HG Papillary & CIS
    3 Years and 30 BCG/BCG+Inf
    Tis CIS comes back.
    BC clear as of 5/17 !
    RCC found in my one & only kidney 10/17
    Begin Chemo; Cisplatin and Gemzar
    8/18 begin Chemo# 3
    Begin year 4 with cis
    2/19 Chemo #4
    9/19 NED again :)
    1/2020 CIS is back
    Tried Keytruda, stopped by side effects
    Workin on a new plan for 2021

Log in to reply.