Forum

× click the New Topic button to post

Inverted punlmp recurrence

2 years 4 months ago #51569 by Franky
Hi Dean,

My mom receives mitomycin whenever she has a turbt done.

Kathleen

Please Log in or Create an account to join the conversation.

2 years 4 months ago #51559 by jeffrx
Welcome to the site. It will be important to have the histology evaluated to see exactly what these new growths are. PUNLMP, as I understand it, are abnormal cellular growths, but not cancer per se. I really wish you the best of luck and let us know how it turns out.

12/2015 - TURBT, non-invasive T1, mixed grade, 3 tumors
1/2016 - Begin BCG weekly for 6 weeks

Please Log in or Create an account to join the conversation.

2 years 5 months ago - 2 years 5 months ago #51364 by Dean285
Hi

I was diagnosed with 2 small inverted punlmp's in February 2015 - had a TURBT to remove them and my 3 month cysto came back clear. Based on the type of tumour - apparently inverted punlmps have a low recurrence rate I was put on a yearly cysto check. My first yearly cysto came back with 5 small lesions - they appear to be non invasive - I'm scheduled for another turbt in 2 weeks - pathology after the turbt will determine the type but hopefully it hasn't progressed.

I know inverted punlmps are very rare but anyone out there have a recurrence of them? I'm kind of freaking out that 5 lesions have re-appeared especially when this particular type of tumour wasn't expected to recur.

I also wanted ask whether a mitomycin instillation as part of the turbt is standard practice for non invasive tumours - some posts seem to suggest that but many others don't mention it.

Thanks
Dean

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add attachements.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 267 Guests 

Statistics

Total Messages: 50861 Total Sections: 1 Today Open: 0 Today Total Answer: 2
Total Subjects: 6516 Total Categories: 11 Yesterday Open: 1 Yesterday Total Answer: 8
Total Users: 7775 Latest User: Sjklawi
Powered by Kunena Forum