My name is Dave and I had a similar issue. I had gone through BCG treatments for three series and one maintenance set and still failed cytology. Anyway, the Dr. Installed a stint and treated me with mytomycin C (sorry. For spelling). He instilled the solution in my bladder and I laid on my side for two hours following the installation. I continued with this for six weeks similar to the BCG treatment and was lucky enough to come clean following the treatment. I had continued to have bilateral retrograde pyelograms (sp) and had laser fulgurites to address issues discovered. I went through this for several years and came back for the first time clean last spring (next operation this may 1). I wish you the very best and hope this is you last set
I've been offline for quite some time. Very long story, but I'll make it succinct.
As some of you may remember, I was cleared of TCC CIS last August, but there was suspicion of t still being present. After much testing it was determined that I had Renal Cell Carcinoma, both kidneys. Thus me being off this support group. While waiting for treatment to being, I had non elective surgery for a life threatening infection in my left knee (total knee in place for fifteen years). This deferred my treatment until the end of January.
So,, BCG every week, directly into alternating kidneys for twelve weeks. I'm now down to three, with the tenth taking place Friday. As I progress through the treatments, the side effects are much worse than when I was treat for Bladder Cancer. SO with my last coming up on 10-April, I'm looking forward to having my life back after begin cleared in May.
I know this is very much off topic here, but you have all helped me so much in the past. Thanks for reading while I purge my story.
Diagnosed: 01/2012 - TCC CIS
All Clear: 06/2012
Diagnosed (Again): 02/04/2013 - TCC CIS
All Clear (Again): 05/03/2013
Diagnosed Yet Again 10/15/2014 - RCC
Mass General Hospital, Boston, MA.