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bladder cancer or interstitial cystitis???

4 years 2 months ago #47100 by Nicke
Hi Tabby,
I was diagnosed 21 month ago with superficial, low grade bladder cancer and I have had similar experience as you. There seems to be a widespread belief among urologists that non-invasive bladder cancer does not give any symptoms except blood in the urine. I say bullshit to that! I did have severe symptoms, pain, urgency, and a general feeling of inflammation before my first TURB. The symptoms were gone after the TURB but came back after 6 weeks, and so did the cancer, twice.

I did call my clinic before my first TURB to get something for the pain. I just got paracetamol, which did not help at all.

Superficial, Low-grade bladder cancer often recurs, but the good thing is that it very rarely became invasive or spreads to other parts of the body.

I am not a doctor, but IF the cancer has recurrence at your check up in October, I think you should discuss about additional treatment (BCG) after TURB with your doctor.

Niklas

12-12 Diagnosis
13-1 Turb TAG1
13-5 Turb Ta low grade, multiple
13-10 Turb TaG2, multiple
13-11 Mitomycin 8 weeks + 6 month
15-01 Turb

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4 years 2 months ago #47099 by GKLINE
Please listen to Sara Anne.


For a moment there I was beginning to believe I knew what I was talking about. :laugh: :laugh: :laugh: :laugh: :laugh: :laugh: :laugh: :laugh: :laugh: :laugh: :laugh:

I am not a DR. And I don't even play a Dr on TV. But I am so funny to myself.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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4 years 2 months ago #47098 by sara.anne
I would sort of part company with George....well, maybe not. With bladder cancer treatament, oncologists are usually involved when the cancaer has spread outside the bladder. You need a urologist who specializes in bladder cancer (OK, George, maybe a urologist/oncologist!)

Interstitial cystitis does occasionally show up with an ulcer in the bladder, but not usuallly. I did have burning and pain...and a second TURB d!indicaed that I had CIS...a form of bladder cancer that is more like a rash on the bladder lining. My urologist said that this could explain my symptoms. Only after a series of BCG treatments did the discomfort disappear.

It is just natural that you would be worried!

Please do find a really good urologist who specializes in bladder cancer treatment!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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4 years 2 months ago #47095 by Alan
Tabby,

Have you had a CT scan or similar test? Flank pain is not normal and could be related to the upper urinary tract/kidneys among all of the rest of your issues. You certainly have had more than your share of ups and downs! I second George in it may be time for another doc.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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4 years 2 months ago #47094 by tabbysbadblad
Thanks for your advice george. Yes I'm following up with an oncologist. I hope you are feeling better. I will keep everyone posted.

Tabby

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4 years 2 months ago #47089 by GKLINE
You have lost your faith in your health care Dr. and it is time to find a Dr that specializes in bladder cancer (oncologist) Time for someone that has seen every aspect of bc.
I had a urologist oncologist that specialized in bladder cancer, not prostate as so many do, bladder cancer.

This is what you need to look for. or maybe your Dr can refer you to a good one.
By the way, I never had any pain associated with bc until they removed my bladder. Your Dr "may" be right. Just sayin

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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