Rosemary and Kim, I think verification of our pathology report and a running knowledge of our type grade and stage is most important to us personally and also those others on this forum who are seeking advice based on our knowledge and experience. In this case, I wanted to clarify your type, grade and stage, Rosemary because Kim was probing and very concerned about the necessity of a re-turb for her mother. She was concerned if it was important to do so. When you said "-- Kim, As you can see, I also had a Re-TUR six weeks after the first, even though I "presented" initially with low grade disease" - - which indicated you went from a TA grade 1 the lowerst possible to a T1 grade 3 in pathology from a re-turb done 6 weeksk later. It may have put an anxious red flag out to Kim and others reading that statement rather than the reader questioning, as I did the validity of the pathlogy reports. This is the first time I heard you tell of a 3rd biopsy Rosemary. I suggest you get the written pathology report from all 3 biospies and if they look very contradictory such as the terrific agreesivness and increase indicated in your first TURB to the second one done six weeks later, you should question the doctor to clarify exactly your type, grade and stage. I am also concerned with you possibly being undertreated or overtreated by you having such confusing information. There are many scares floating around in the cancer community through hearsay, third person reports, improper write ups, under or overstated pathology reports that can be perpetuated unless we can verify or discount. I went through 2 years of feeling overly scared about my condion becuase of those I dealt with the most in the medical arena and/or patients were overly dramatic, cautious and warning of possible dire consequences or outcomes. That is why clarification of what type, stage and grade needs to be part of all cancer discussions. Rosie
