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Deja Vu All Over Again

6 years 8 months ago #44125 by mmc
Joe,

A recurrence of CIS should trigger a discussion about pros and cons of bladder removal. Probably not what you want to hear but it should be discussed with your doc.

First time CIS is BCG but any recurrence kind of indicates where this thing is going and you want to get it out before it has a chance to spread outside of the bladder.

You may very well go through another round of BCG but it depends on how aggressive you want to be about treatment.


Good luck!
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 8 months ago #44124 by globalguy
It's taken me a bit of time to sit down and write. Sorry for the delay.

I'm once again a cancer patient. Surgery determined that the cancer is localized to my bladder, Thank God. CIS again. So we begin BCG treatment
one week from today for the usual six weeks, followed by an additional TURBT. Dr. wants to be more aggressive in that a peak a poke found nothing "unusual last few times.

It was hard enough getting my head around this the first time. Now, I'm just numb. It isn't that I'm hearing a negative prognosis from my medical team, it's more that I just can't believe I'm right where I was this time last year. Of course, my mind takes over at times and sleep doesn't come easily if at all.

So prayers and positive vibes would so much be appreciated.

Thanks for reading my vent and God Bless.

Joe

Joe P

Diagnosed: 01/2012 - TCC CIS
All Clear: 06/2012
Diagnosed (Again): 02/04/2013 - TCC CIS
All Clear (Again): 05/03/2013
Diagnosed Yet Again 10/15/2014 - RCC
Working It
Mass General Hospital, Boston, MA.

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6 years 9 months ago #43979 by globalguy
I'll be sure to post once I have some results. I should have something from pathology, towards the end of next week.

Super Bowl Sunday will be quiet as I'll just be kicking back feeling positive vibrations and prayers while preparing for surgery the following day.

Best to you all and good health,

Joe

Joe P

Diagnosed: 01/2012 - TCC CIS
All Clear: 06/2012
Diagnosed (Again): 02/04/2013 - TCC CIS
All Clear (Again): 05/03/2013
Diagnosed Yet Again 10/15/2014 - RCC
Working It
Mass General Hospital, Boston, MA.

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6 years 9 months ago #43975 by mmc
I've been offline a bit due to illness. Sorry I didn't get a chance to wish you well prior to surgery.

Hope all went well!!!

Let us know when you can.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 9 months ago #43971 by sara.anne
So sorry that you are going to have this worry. But it is a lesson to others as to WHY we keep up with our exam schedule!!!

Lots of good thoughts coming your way...

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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6 years 9 months ago #43970 by CatherineH
Joe... So sorry to hear this news. At the one year mark, we start to breathe just a little easier (JUST a little), so I understand how this feels worse than the first time. I so hope the doctor is wrong, and if there are any bad cells, they are just microscopic in the bladder and he could not detect them visually during your cysto. I think he is jumping to conclusions telling you it might be elsewhere outside your bladder until the biopsies come back.

Best wishes for your surgery on Monday. You know as always, we will be right here sending you our very best positive vibes!

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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